Wednesday, March 17, 2010

Since being diagnosed with Multiple Sclerosis

I have been reading up on different types of treatments for Multiple Sclerosis. I also keep an everyday journal of how im managing Multiple Sclerosis. I also include tel tel signs of a flare up and new symptoms. I'm currently on Neurontin and Zanaflex. I was on Copaxone but just recently the doctor decided to switch me to Avonex. Copaxone caused me huge bloody welts and a nasty rash. Plus the daily shots were to much to handle. If MS isn't hard enough to manage to juggle a daily shot just threw a curve in it. I can count on one hand how many flare ups ive had in a lil over a year since my diagnosis. My last flare up the steroids really didn't help. So this flare up my neurologist decided to hold off on the steroids. I have been getting progressively worse. At the beginning of my diagnosis I was just exhausted had muscle spasms and some weakness. These days I would just love to still have the same problems. But I don't and its becoming a lil more scary for me. Currently I have foot drop, severe weakness in both legs, vision problems, and my newest problem is im loosing grip in both hands. My neurologist says im progressing quicker then most MS patients she sees. That also worries me because I want to stay active for as long as I can. I'm unable to work because of this disease. Im unable to live on my own as a result of this disease. I'm unable to raise my son on my own because of this disease. I'm grateful for my mom who is helping with my son. I'm grateful for my boyfriend who has stayed by my side throughout all my problems caused by MS. I'm grateful for my friends who im meeting. I know there are many days where things might go wrong. But i have to remember to hold my head up high and smile. Because in the end you control your destiny.

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