Thursday, April 22, 2010
Multiple Sclerosis throws a curve in life
I woke up the other day to many thoughts. There was one that stuck out in my mind. You ever think of the what ifs when having a disease you have no control over. I thought to myself what if one nite I go to bed and wake in the morning to not being able to walk. This would mean no more play time with my son. No more evening walks with family and friends. It truely scares me to know this will be my fate in the near future. Im living off this saying these days. "You only live ounce and today im going to live life to the fullest cause you never know what tomorrow will bring". As what my neuro nurse says you have progressed rapidly compared to several patients she has seen. My MS specialist explained to me that its rare to see people with a progressive form of MS. Why? I ask why me? I was healthy active and didnt live a risky lifestyle. But now im unable to hike the mountain trails, raft down the rapids, climb rockwalls, and run after my son. This just blows my mind. A wheelchair as an accesory is the way I have to think. Or ill live in self-pity over living with MS. To combat my issues I have other health problems. I have kidney disease, a leaky valve in my heart and a mass growing at the end of my esophagus. Alot of problems I have cant be taken care of right away cause I have MS. Every test, procedure and surgery has to be planned out just right. So I dont end up in a relapse. Ohh and im no longer on Copaxone. That was a painful pain in the ass. An everyday shot to prevent further issues. Huh I dont think so....The site reactions and the shit you have to live with. I switched to Avonex. Yeah I feel like hell for a day. But the shot doesn't cause site reactions and I dont need it daily. I think this will be just right for me since I have a busy schedule. On another note so glad the weather is staying nice. And im hoping for better days ahead me.
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